Ramona Mae

Some great news today. Ramona had an appointment with cardiology yesterday morning to be cleared for the G tube surgery. Here’s what happened…

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I yelled at the fence guy today. He is doing a very crappy job, I want it better and I’m not going to pay him until it’s right. That’s what I should have said. Instead I told him I was busy taking care of Ramona and Simon and didn’t have time to babysit him too.

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We weighed Ramona this morning, 15lbs 3oz, what a champ. She’s been working pretty hard these past days, sitting up with help, even trying to bear a little weight on her legs. She’s getting the hang of grasping a few select objects and is becoming a tube Houdini. I know I should be thrilled and optimistic. And I am hopeful, but today I’m still just really worried about her.

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Ramona had a speech therapy appointment this morning and it looks like things are going in the direction of having a G tube placed. This would be a tube placed directly into her stomach through her abdominal wall. It is usually an outpatient procedure.

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One of the pleasures of my childhood was walking in the woods in springtime. My mom knew all the names of everything and we made a ritual out of spotting each thing and remembering it’s name. The spring beauties, the solomon’s seal, both true and false, jack-in-the-pulpit, red trillium and the great white trillium, my favorite.

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