Hi everyone. Sorry for the silence lately. Here’s the latest.

Ramona has been doing well at home. Jane and I are still trying to figure out how to get MORE SLEEP, which has been made more difficult by Simon spiking a fever for the last 4 days, waking up at night needing cuddles from Mom, etc. We’ve had some special visitors. My mom stayed with us for the last week and was a huge help, and Auntie Eva has been spending her precious summer vacation with us as well. The home healthcare company picked up all the oxygen equipment – yea!

Later today we finally have the consult with the surgeon for the g-tube.

Stay tuned!