Archive for April 2008
Thursday, April 24, 2008
Surgery Scheduled!
We’ve just heard from the hospital and they’ve scheduled Ramona for 10:30 tomorrow. We’ll arrive at 9:00.
5 Comments » - Posted in Updates by Jane
Tuesday, April 22, 2008
News To Me
We had a very interesting appointment with the cath lab surgeon today. I really like him, he’s always very direct but answers questions thoughtfully and compassionately. He seems to understand how important everything he says is to us. Every doctor we’ve spoken with has their own take on Ramona’s treatment plan and [...]
12 Comments » - Posted in Updates by Jane
Saturday, April 19, 2008
Pre-TSD
I’ve been having trouble falling asleep. Getting surprised by a pit in my stomach when think about Ramona’s upcoming surgery. A heart cath is really not a huge deal when compared to open heart surgery. But it’s a big deal compared to staying home and going on with life as usual.
11 Comments » - Posted in Updates by Jane
Tuesday, April 8, 2008
Little Tree (A Birthday Story)
The thing I remember best about our first days with Simon is the way his birth seemed to coincide with the arrival of spring. It seemed to me that the whole earth was celebrating his arrival by blooming and warming and coming alive. Here is a story I wrote to celebrate the special [...]
15 Comments » - Posted in Updates by Jane
Monday, April 7, 2008
Update
I am glad to report that Ramona is sick. Sounds crazy I know, but I was so relieved tonight when Ramona spiked a fever, that means her low sats and funky coloring are most likely due to a cold or something and may not be related to her cardiac status. So although having [...]
4 Comments » - Posted in Updates by Jane
Monday, April 7, 2008
Drifting
Hi all. We’ve had a nice and very busy weekend. We didn’t make it up to Milwaukee for a meeting of families affected by 22q11, as I had hoped to, but we did get out there and enjoy the nice weather. I even got a little sunburned.
8 Comments » - Posted in Updates by Jane
Friday, April 4, 2008
Audiology
Just a quick note to say that Ramona had a hearing test today. Although they were unable to get her to cooperate for the whole test, what they did complete was normal.
9 Comments » - Posted in Updates by Jane
Tuesday, April 1, 2008
Funktacular
No, funktacular is not a new medical term. It’s the mind-addling, inescapable smell wafting through our whole house, courtesy of Simon. And no, it’s not poo-poo.