Thu, Jan 15, 2009
Out Of The Blue
Posted at 10:25 pm by Jane under Updates
[32] Comments
We received an ambiguous phone call from our cardiologist’s nurse today. She wanted to let us know that Dr. Wax (the cath surgeon) had heard back from his overseas colleague and that Dr. Wax is now recommending we try something surgical for Ramona.
We don’t know what this might be. The nurse didn’t know and we will likely need to wait until her February 5th appointment to find out. This news is exciting, troubling, confusing and hopeful. I’m feeling encouraged that they might be able to do something else for her but am confused and anxious about what it might be and when.
Please pray that we will have peace while we wait to hear what her team is recommending. Here’s a shot of Andy and me (no babies!) on New Year’s Eve. It was our tenth wedding anniversary! I love you baby, Happy Anniversary.
January 15, 2009, at 10:48 pm
AHHH! This is so exciting! I’m anxious along with you guys
January 15, 2009, at 10:58 pm
Wow we will certainly be praying. Miss you guys, great pic by the way
January 16, 2009, at 12:36 am
Oh Jane, why did she PHONE without more information! I would go crazy.
January 16, 2009, at 12:42 am
It sounds like good news! I’m glad to hear it! And I love the picture of you two. You are a beautiful couple! Happy Anniversary!
January 16, 2009, at 1:43 am
Yeah, I am so excited! I can’t believe you have to sit her and wait another 3 weeks to find out what it is.
Happy Anniverary!
January 16, 2009, at 7:36 am
Try doing a little dancing in the basement to waste the time away btw now and the 5th. Dancing always helps.
January 16, 2009, at 8:44 am
This sounds quite promising, but your bevy of emotions is completely justified. Will be praying that you learn more soon.
January 16, 2009, at 8:48 am
That’s exciting, but a long time to wait for more news! You two look wonderful (and really just the same since LU!). Congrats on 10 years—my husband and I celebrated our tenth last June.
January 16, 2009, at 8:54 am
That could be good news! Praying for you…
January 16, 2009, at 9:32 am
Wow…I’ll definitely be praying. And happy belated anniversary!
January 16, 2009, at 10:30 am
praying and hoping!!
xo, Melissa
January 16, 2009, at 1:02 pm
Wow Jane and Andy. We will be waiting with you and for you. You guys look so good in this picture! Miss you all so much!
January 16, 2009, at 1:32 pm
Congrats on ten years! That pic of you two is very sweet…so cute.
Waiting till Feb 5th for more information…UGGHHGH! It sounds hopeful to me. I wouldn’t think that a nurse would call to give you a heads up if it weren’t positive news. We will send up prayers to confirm GOOD news…and I’ll be eager to hear what the other option is!
Take care. Enjoy your weekend! xooxx
January 16, 2009, at 1:59 pm
this is exciting news we are sending you lots of love and hoping for the best! Sending wishes of patients and more patients while you wait for the apt. hurry up and wait is always hard! ~wyndi
January 16, 2009, at 3:20 pm
am so excited for you guys. Will keep you guys in my prayers! Love you Ramona and co.!!!
January 16, 2009, at 5:34 pm
Wow. Confusing, exciting, maddening, I’d think! We’re praying for and thinking about you lots. You’re both adorable – congratulations on your anniversary! Hard to believe it’s been so long and how much has happened. You are beautiful and precious to us.
January 16, 2009, at 9:49 pm
Will hold you in prayer while you wait to hear more. And will pray that the news is hopeful! Thinking of you all!
January 17, 2009, at 8:16 pm
jane, how weird that she would call with such a mysterious message and leave you hanging. would have to guess that she interpreted it as good news. fingers crossed!
ros and heidi
January 18, 2009, at 7:42 am
This is great to hear—maddening that you have to wait for specifics, but we will all be waiting with you!
love, the Boyds
January 18, 2009, at 5:35 pm
Wow We will be holding you in prayer around this new bit of hope. It is hard not to know more, I’m glad there are creative docs out there seeing new possibilities.
Peace to you all
Kerry and Eric
January 19, 2009, at 2:15 am
Wow! I hope you hear soemthing wonderful in February.
As always, my prayers are with you guys. And happy anniversary!
January 19, 2009, at 12:49 pm
Anxious to hear more after Feb 5th! Happy anniversary you handsome couple.
xoxo
January 20, 2009, at 3:48 pm
That is certainly a “Well, well, well… what does this mean?” I am sure you don’t want to get ahead of yourselves, but I hope it can be the initial seed of something wonderful. Hope 2009 has great things in store. Prayers and thoughts always with you.
January 20, 2009, at 10:54 pm
oh my gosh!
That’s not even right…teasing you and not giving you some info…GIRL…I hope you remain calm and wait for the news. How amazing!!!
and I must say…you two are SO DARN CUTE!!! Happy Anniversary!!!
I’m still in awe of your card…what an amazing doctor…to seek out every possible alternative. awesome.
hope you’re having a wonderful week!
January 22, 2009, at 9:30 am
Hi Jane,
I know it has been ages since I ‘ve been in touch. I did want you to know I still check your blog everyday and think about Ramona all the time. I am so excited that they have something that they want to try! I wonder if it is a RV to PA conduit???!!! Anyway, I am praying for all of you.
Kelly (Jack’s mom)
January 23, 2009, at 1:19 am
Belated HAPPY HOLIDAYS!
Belated HAPPY 10TH ANNIVERSARY!
Advanced HAPPY WEEKEND!
Praying and counting down with and for you until your appointment on 5 Feb…
January 30, 2009, at 11:02 am
Hi. You definitely don’t know me, but I have been following your blog for the past few months and think that your daughter Ramona is just beautiful. I’m a young heart mom too with a nearly 5 month old daughter with the 22q deletion. Actually she has a theraputic cath coming up Feb 12 that we are praying all goes very well. Just wanted you to know that ever since I found your blog and especcially since your post about your daughter’s cath, I have been praying very hard for your baby! Ah the beauty of the Web huh? Thank you for sharing your struggles and updates of that beautiful girl. We will keep praying for your family! Please say a prayer for us too if you think to. God bless!
February 1, 2009, at 7:13 pm
Hi! We are praying that a wonderful possibility will appear on the 5th. Thought of you, Andy, as we went to PAC Symphony last night. It was a tribute to Louis Armstrong. Trumpeter(and vocalist) (and comedian) Wayne Stripling was the guest. He was great and the percussion was amazing, too. Our best wishes for a happy result Thurs. Love, Bev and Fr. Bill
February 5, 2009, at 7:01 am
Just thinking about you guys today. I hope you get some good, exciting news at your appointment.
February 5, 2009, at 11:01 am
thinking about the family today. hope the appointment goes well and positive. sep
February 5, 2009, at 12:40 pm
Yes, thinking about you! Love.
May 20, 2009, at 5:52 pm
Hi Jane,
I hope you remeber me from group in chicago. I saw your name and the prayers for your daughter. I am sorry I did not hear of this a long time ago. It is my own fault, life has gotten ahead of me and I have lost touch w/ so many in chicago. Your children are beautiful and I will keep you and the family in our prayers. much love, sean and mark schumacher