Author Archive
Tuesday, September 2, 2008
Home Again
OK, false alarm. We are home again. Not sure what caused her desaturations earlier today, but it seems to have resolved. She has been working on a cold (and so have the rest of us) for about 10 days, so maybe it’s related to that.
18 Comments » - Posted in Updates by Jane
Tuesday, September 2, 2008
ER Visit
Hi folks. We’ve been chugging along here, mostly good times. Now we’re headed into the ER. Ramona’s had some breathing problems, low sats, funky color. Please pray that it’s nothing, or at least not a BIG something.
8 Comments » - Posted in Updates by Jane
Sunday, July 20, 2008
Fat Chance
We are all sick, again. Some random virus whose symptoms include fever, vomiting, runny nose and rash. This makes six straight weeks of someone in our house being sick. I have to tell you, I am sick and tired of being sick and tired. Having someone forcefully vomit blueberries and ground [...]
20 Comments » - Posted in Updates by Jane
Thursday, July 10, 2008
Serenity Now!
We have had a trying few weeks here, ugh. We all came down with a nasty strain of HERPES that was passed on to us by a caregiver via another child. Simon and Andy were the worst hit but Ramona and I have been pretty run down too. This particular strain presented [...]
11 Comments » - Posted in Updates by Jane
Monday, June 30, 2008
The Mighty Munchkin
Oopsie. Has it really been more than a month since I’ve posted? We’ve been having fun mostly. The big news is that Ramona is doing well and GROWING. She has gained three pounds and grown two inches in the two months since her cath. We also baptized both Simon and [...]
14 Comments » - Posted in Updates by Jane
Wednesday, May 21, 2008
Bikes!
“More bike please?” “Bike outside please, Mommy?” “Little bike back please?” All day they are asking me for bikes! They are obsessed. They take turns (sometimes), they push each other on the bikes, they chase and race. They would rather ride bikes than watch TV. So, we’re doing [...]
11 Comments » - Posted in Updates by Jane
Sunday, May 11, 2008
Outtakes
Anyone else out there suffer from blog envy? You know, you log in to your friend/relative’s blog only to discover that they are living a perfect life with perfect thighs and perfect hair and fabulous vacations. And you think, “I need to get it together”. I’ve been thinking lately about what I [...]
17 Comments » - Posted in Updates by Jane
Tuesday, May 6, 2008
Sabbatical
Well, we’ve heard from the surgeons. They’ve agreed, as we expected, that Ramona is not yet ready for her full repair. They feel she is stable for now, and since her arteries do seem to be growing, they have recommended that we wait for six months and then take another look.
14 Comments » - Posted in Updates by Jane
Thursday, May 1, 2008
Kate’s Kart
Little Kate lost her battle with congenital heart disease at just 18 months old. She was born with the same heart defect as Ramona and also had 22q11. Her family’s story and faith have touched me deeply. They have started a program at their local hospital to provide books to sick children [...]
Comments Off - Posted in Updates by Jane
Thursday, May 1, 2008
Just Breathe
We’re adjusting around here. Adjusting to a new world where positive news about Ramona’s heart is possible. It’s a big adjustment for me, going from cautiously optimistic to less cautiously optimistic. And I find that my usual “eloquence”, also known as long-windedness, about Ramona’s prognosis has just vanished. When asked how [...]