Author Archive
Friday, November 6, 2009
To the Cath Lab!
Hi all! It’s a been a while since we’ve posted anything…which is good! Things have been pretty quiet lately. The walk in August was a big success, with over $10,000 raised and 300 walkers. We were so pleased and blessed by the experience. Ramona had a heart cath today. They performed angioplasty in three places [...]
11 Comments » - Posted in Updates by Jane
Friday, July 17, 2009
Please Register Now for Slow and Steady: A Walk for 22q11 Awareness
Hello everyone, Online registration is now available for Slow and Steady: A Walk for 22q11 Awareness on August 22nd, 8:00am in Glen Ellyn, IL. Registration will be open until August 1st. Please follow the link below: http://www.pinkhippobows.com/ The online registration is being generously provided by our sponsor, The Pink Hippo. Although donations/registration fees will not [...]
4 Comments » - Posted in Updates by Jane
Thursday, July 9, 2009
Slow and Steady: A Walk for 22q11 Awareness
UPDATE: We have received such a great response about the walk. Many have asked who to make a check out to or how to officially register. We are working to get an online payment and registration going. In the next few weeks I will send an email out to those who are “pre-registered” with more [...]
19 Comments » - Posted in Updates by Jane
Saturday, June 6, 2009
Calling All Heart Moms!
Hi there! We’re still waiting for the surgeons to conference on Ramona’s last cath. Rest assured, as soon as I have something concrete to share I will. Everything went fine and the results seem good, so we’ll see. But I’m posting today to ask for some help from my fellow heart moms. I have reconnected [...]
9 Comments » - Posted in Updates by Jane
Tuesday, April 28, 2009
Drip, Drip, Drip
I spoke with the cardiologist this morning very early. I think we’ve gotten some good news. She was able to meet with the CV surgeon and cath surgeon last night to discuss Ramona’s care and it sounds like we have a good plan.
21 Comments » - Posted in Updates by Jane
Monday, March 9, 2009
Cath Scheduled
Hi there, it’s been a while! We’ve been white-knuckling through these final days of winter and can’t wait for the SPRING. A quick update:
15 Comments » - Posted in Updates by Jane
Thursday, February 5, 2009
Maybe Baby
We saw the cardiologist this morning and got some more information. Here is what the cath surgeon is proposing:
17 Comments » - Posted in Updates by Jane
Thursday, January 15, 2009
Out Of The Blue
We received an ambiguous phone call from our cardiologist’s nurse today. She wanted to let us know that Dr. Wax (the cath surgeon) had heard back from his overseas colleague and that Dr. Wax is now recommending we try something surgical for Ramona.
32 Comments » - Posted in Updates by Jane
Wednesday, December 24, 2008
Merry Christmas!
With all of the shopping, wrapping, partying and whatnot this time of year, it hardly seems like a good time for reflection and introspection. But what the heck, here goes anyway…
15 Comments » - Posted in Updates by Jane
Wednesday, November 26, 2008
The Birthday Girl!
Ramona is two years old today. She’s shaping up to be a beautiful, sweet, challenging and charming little thing. She loves turtles, sitting on people’s heads, dressing up (Oh wait! That one is all me…) and playing with Simon. She’s not at all who I thought she’d be when I learned I was pregnant with [...]