Comments on: Ramona So Far http://ramonamae.com News and prayer requests Thu, 11 Mar 2010 01:00:55 +0000 hourly 1 http://wordpress.org/?v=3.0.1 By: AMY http://ramonamae.com/the-begining-of-the-story/comment-page-1/#comment-5023 AMY Mon, 25 Jan 2010 23:31:46 +0000 http://ramonamae.com/the-begining-of-the-story/#comment-5023 MISS YOU GUYS MISS YOU GUYS

]]> By: Becky http://ramonamae.com/the-begining-of-the-story/comment-page-1/#comment-4722 Becky Tue, 15 Sep 2009 02:51:22 +0000 http://ramonamae.com/the-begining-of-the-story/#comment-4722 Beautiful family! Our daughter was born 4-15-07 and diagnosed 4-17-07 with TOF. She wasn't diagnosed with 22q11 deletion until 3-08. Your blog is wonderful. I pray for your family. Beautiful family! Our daughter was born 4-15-07 and diagnosed 4-17-07 with TOF. She wasn’t diagnosed with 22q11 deletion until 3-08. Your blog is wonderful. I pray for your family.

]]> By: Babette http://ramonamae.com/the-begining-of-the-story/comment-page-1/#comment-4648 Babette Fri, 31 Jul 2009 20:19:40 +0000 http://ramonamae.com/the-begining-of-the-story/#comment-4648 Indeed, God bless Ramona and God bless you. Blessed, Blessed BE! Indeed, God bless Ramona and God bless you. Blessed, Blessed BE!

]]> By: Cassie Cimaglia http://ramonamae.com/the-begining-of-the-story/comment-page-1/#comment-4514 Cassie Cimaglia Fri, 12 Jun 2009 19:19:13 +0000 http://ramonamae.com/the-begining-of-the-story/#comment-4514 I came across your family on the Pink Hippo website. What an amazing family you have. I will keep Ramona in my prayers - she is one strong and beautiful little girl. I am 27 years old and monther of two. I had a very rare heart defect and had open heart surgery at four weeks old. It's a miracle what the doctors can do. I will continue to check this website and I just wanted you to know I will be thinking of your family. I came across your family on the Pink Hippo website. What an amazing family you have. I will keep Ramona in my prayers – she is one strong and beautiful little girl. I am 27 years old and monther of two. I had a very rare heart defect and had open heart surgery at four weeks old. It’s a miracle what the doctors can do. I will continue to check this website and I just wanted you to know I will be thinking of your family.

]]> By: Katie http://ramonamae.com/the-begining-of-the-story/comment-page-1/#comment-4504 Katie Mon, 08 Jun 2009 15:09:52 +0000 http://ramonamae.com/the-begining-of-the-story/#comment-4504 I am the mother of Henry Bridges-Simpson's also diagnosed with TOF, PA, MAPCAs and DiGeorge Syndrome and you commented on our website via Sophia's blog. I just got a chance to read Ramona's blog and your family's story is one of such love and strength. Ramona is a beautiful little girl and in our thoughts. We will definitely follow your story- these children are so resilient:) I am the mother of Henry Bridges-Simpson’s also diagnosed with TOF, PA, MAPCAs and DiGeorge Syndrome and you commented on our website via Sophia’s blog. I just got a chance to read Ramona’s blog and your family’s story is one of such love and strength. Ramona is a beautiful little girl and in our thoughts. We will definitely follow your story- these children are so resilient:)

]]> By: Yasmin http://ramonamae.com/the-begining-of-the-story/comment-page-1/#comment-4402 Yasmin Mon, 16 Feb 2009 21:57:25 +0000 http://ramonamae.com/the-begining-of-the-story/#comment-4402 hi to you. I was just searching google for a picture of TOF and I came across your page. I am deeply touched of Ramona's story and would like to share a little something for Ramona and the parents. For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place. When I was woven together in the depths of the earth, your eyes saw my unformed body. All the days ordained for me were written in your book before one of them came to be. – Psalm 139:13-16 God bless your family. hi to you. I was just searching google for a picture of TOF and I came across your page. I am deeply touched of Ramona’s story and would like to share a little something for Ramona and the parents.

For you created my inmost being;
you knit me together in my mother’s womb.

I praise you because I am fearfully and wonderfully made;
your works are wonderful, I know that full well.

My frame was not hidden from you
when I was made in the secret place.

When I was woven together in the depths of the earth,
your eyes saw my unformed body.

All the days ordained for me were written in your book
before one of them came to be.

– Psalm 139:13-16

God bless your family.

]]> By: Fr. Bill and Bev Johnston http://ramonamae.com/the-begining-of-the-story/comment-page-1/#comment-4379 Fr. Bill and Bev Johnston Sat, 24 Jan 2009 17:13:00 +0000 http://ramonamae.com/the-begining-of-the-story/#comment-4379 Dear Andy and Jane, We had dinner with your folks when they were in Appleton visiting John and they told us more about your daughter. She is GORGEOUS and I know how much her grandparents love her. We will add our prayers to yours and expect that God will bring blessings and peace to each of you. With love and hope, Fr. Bill and Bev Johnston Dear Andy and Jane,

We had dinner with your folks when they were in Appleton visiting John and they told us more about your daughter. She is GORGEOUS and I know how much her grandparents love her. We will add our prayers to yours and expect that God will bring blessings and peace to each of you. With love and hope, Fr. Bill and Bev Johnston

]]> By: Fr. Bill and Bev Johnston http://ramonamae.com/the-begining-of-the-story/comment-page-1/#comment-4378 Fr. Bill and Bev Johnston Sat, 24 Jan 2009 17:10:08 +0000 http://ramonamae.com/the-begining-of-the-story/#comment-4378 Dear Andy and Jane, Dear Andy and Jane,

]]> By: Katelyn Ethier http://ramonamae.com/the-begining-of-the-story/comment-page-1/#comment-4330 Katelyn Ethier Mon, 15 Dec 2008 04:57:32 +0000 http://ramonamae.com/the-begining-of-the-story/#comment-4330 I came accross this and I need to comment on it. I am a 17 year old girl with Tetralogy of Fallot and I was suprised to hear that there really are other kids with this rare condition. I have had 4 surgreys in my life so far and more to come. I am praying for a happy healthly life for your young girl. I now feeling better knowing that I am not alone with this type of heart condition. - Kateln I came accross this and I need to comment on it. I am a 17 year old girl with Tetralogy of Fallot and I was suprised to hear that there really are other kids with this rare condition. I have had 4 surgreys in my life so far and more to come. I am praying for a happy healthly life for your young girl. I now feeling better knowing that I am not alone with this type of heart condition.
– Kateln

]]> By: MIke Cummins http://ramonamae.com/the-begining-of-the-story/comment-page-1/#comment-4191 MIke Cummins Fri, 31 Oct 2008 20:16:47 +0000 http://ramonamae.com/the-begining-of-the-story/#comment-4191 Andy & Jane- Molly just called me with the news about Ramona's surgery. I wanted to let you know that Ramona is in our hearts and prayers. Please let us know if you need anything after she gets home. Pax Christi, Mike Andy & Jane-
Molly just called me with the news about Ramona’s surgery. I wanted to let you know that Ramona is in our hearts and prayers. Please let us know if you need anything after she gets home.
Pax Christi,

Mike

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