Ramona Mae

I have always felt proud of our son Simon. Proud of the way he charms people. Proud of the way he wakes up each day ready to go, go, go!
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We were further devastated to learn this morning that Ramona has a chromosomal syndrome. Although what this will mean from her is unclear, it does carry with it some risks for immune system problems, mental retardation and palate abnormalities among other things. It is also possible that she would show no further symptoms beyond her heart defect.
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Well the doctors told us at rounds this morning that Ramona will come home tomorrrow! We’re thrilled, proud and terrified.
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