Ramona Mae

I am glad to report that Ramona is sick. Sounds crazy I know, but I was so relieved tonight when Ramona spiked a fever, that means her low sats and funky coloring are most likely due to a cold or something and may not be related to her cardiac status. So although having a sick baby stinks and we’re probably all about to get sick, I’m super-relieved.

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Hi all. We’ve had a nice and very busy weekend. We didn’t make it up to Milwaukee for a meeting of families affected by 22q11, as I had hoped to, but we did get out there and enjoy the nice weather. I even got a little sunburned.

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