Wed 28 Feb 2007
Hurry Up and Wait
Posted by Jane under Updates
[5] Comments
We’re all excited, we’ve got all the gear, we’ve got our makeshift hospital room all set. Now all we need is the baby.
Because the DiGeorge diagnosis involves so many different departments and specialists, we’ve hit a snafu with Ramona’s discharge. They still have not agreed on a dosage for her calcium. They need to see that her level remains stable for one more day before they release her. So we’re hoping that it will be stable tomorrow morning and tomorrow will be her homecoming. Her new hospital room is a little noisy and we’re anxious to get her home to some peace and quiet.
Some good news today, we found out that Ramona’s immune system is normal. This a big relief as any respiratory illnesses would be very serious for Ramona and these recent tests show she will be no more susceptible than a “normal” child would be.
We’re still thrilled that she’s able to come home anytime, we’ll keep you posted,
Jane.
Dear Ones – I am so pleased to hear your latest good news! No, not the news that Ramona’s homecoming is delayed:) The other news! That her immune system is normal! Go, Ramona!
Hi, Jane –
Just wanted to let you know that Steve and I (and so many others from our own circle) are holding you and your family in intense prayer at this time. I’m just returning from a business trip but hope to get settled to give you a hand with groceries and such ASAP! Thanks for keeping us all updated with new details, tender musings and witty banter. Much love to you all.
Oh,Jane and Andy – this is fabulous news!! HUGE!! I’m praying that the good news just keeps on coming…
BRING IT,LORD!
So glad to hear the good news about Wonder Baby’s immune system. She never ceases to amaze. Go Mona Mae.
I know you’re ready to get her home. The familiarity of home is a perfect place to grow those arteries.
We look forward to a photo of her at home, where she should be.
Take care of yourself and try to get some rest.
We’re praying for more good news. It truly is amazing how far she has some in a few weeks. I mean seriously, this kid…she is defying all the odds.
Lots of peace and love. Welcome Ramona Mae Deitrich!!
Good luck with the transition to home. That is great news about Ramona’s immune system! She is an amazing little girl, and we can’t wait to see her settled in on Argyle street.