Sun 20 May 2007
Sweet Sixteen
Posted by Jane under Updates
[10] Comments
Miss Mona Mae weighed in at an even 16lbs this morning.
She’s been enjoying a visit with Grammie and Big Papa this weekend and slept until almost 7:00am this morning (Simon decided to even it out by waking up at 5:00am). We also had the great big pleasure of introducing her to her cousins Connor, Sam and Jack from Wisconsin. Simon had a ball with the boys and was so impressed by everything they could do that he just stared most of the day, his jaw slack with amazement.
She’s got a full week this week. Tomorrow she will have her surgical consult and then we will meet her nurse Desty for coffee. Tuesday is occupational therapy and a visit from Aunt Julie. Wednesday is developmental therapy and her rescheduled pediatrician’s appointment. Thursday is Grandma day and Friday we meet with the social worker. This is all of course flexible should they decide to schedule her surgery this week, which I think would be great.
Please pray that she will be able to keep her energy up. Ditto for the rest of us. Three pics today: A shot of Grammie, Big Papa, Andy and the boo-boo’s. A shot of Ramona with a really sweet barrette sent to her by the ladies at Pink Hippo Bows. Thanks ladies, they’re adorable. And lastly, a shot of Simon feeding his wubby Roar a bottle, what a crack-up.
Love, Jane.
Hey Jane:
I wanted to let you know about a pacifer (soothie style) that is great for babies with a nasal cannula. Here is the web site.
http://www.soothiepacifier.com/Hawaii-Medical-Pacifiers_c_3.html
Take Care
Wow, what sweet pictures. Love the bow Ramona….you are truly stylin! And Simon, you are so handsome!
Love, Val
Hello.
Just a quick note to let you know that we are still checking in and praying for you every day. Your children are absolute angels. (We love the picture with Wayne and Sue.)
Warmest wishes,
Eileen and Frederic Villoutreix
(Paris, France)
Hello, I loved seeing the picture of Grammie and Big Papa with Andy and children. Although, this is only my second response, I read the blog first thing every morning and often check in throughout the day. You all inspire me – mostly little Ramona Mae. What a little fighter and such a beauty, too. I pray that the coming week goes smoothly and y’all continue to grow stonger in every way.
Our best wishes,
Vicki and Ernie
I hope the busy week is not too overwhelming. Is the surgery you are hoping for the g-tube or the next-stage repair which is still uncertain?
Anyway, good luck to all and thanks for sharing the lovely pictures. You are a great photographer!
Dear Ramona
I know it’s been a while since I sent you a note…are you reading yet? in college? Ok, just kidding, it has NOT been that long!
I just wanted to tell you about our pool. Yeah, we have a pool next to our house and it’s very cool…actually it’s cool in that it’s neat but it’s also cool as in the water is like 70 degrees.
That last cold snap really made it cold in there even though the temperature OUTSIDE the pool is like in the 80’s this weekend.
Even though it was cold in that pool the kids would NOT take no for an answer now that it’s all cleaned up and ready to have swimmers in it so in they went today. They were swimming a lot longer in there than I would if I had gone in frankly. Their little lips were blue but they were so happy to be in there.
Sometimes life is like that Ramona. The water may be a little cool but we’ve been waiting so long for that swim that we just take a chance and jump right in. As Riley said, “it’s cold…but you get used to it…and then it’s fun.” Words to live by.
Kiss mama, dad and simon for us down here in the south!
love-
miss angela
Wow, what a busy week! I hope the consult goes well today and that you are able to schedule surgery soon. I am impressed with Ramona’s weight gain! Ava just went in for her one-year check and she weighs 17 lbs 14 oz (and that’s right after I gave her a 6 oz bottle!). You are doing such a great job with your adorable kids!
Simon and Ramona are beautiful. Thank you Lord for all the love these kids (mom and dad too) are getting. It sure sounds like a full week – continued prayer for strength for the journey and we praise God for new mercies every morning.
Love to you all,
Jackie
16…WOW! Aidan just hit 20, she is catching up fast.
Aidan told me he would like to come and play with Simon again soon 😉 He wants to show Simon his new moves.
I want to come and play with Simon, too! But I don’t have any new moves.
I love his two little teeth. Adorable. And Ramona’s looking great.