Wed 20 Jun 2007
Strung Out
Posted by Jane under Updates
[14] Comments
I’ve gotten bunches of requests for pictures of Ramona. I’ve been hesitant because Ramona has been looking like something out of Naked Lunch for a few days. She’s a narcotics junky. But this morning she seemed pretty with it, so here you go…
We moved up to the floor last night. The floor makes the PICU look like the Four Seasons. When I arrived upstairs and got her room number, they directed me to the very end of the hall, where Ramona was alone in her room, crying. I was upset too. I tried to keep my cool but ended up bursting into tears when the nurse came in, whereupon they moved Ramona to a room directly across from the nurse’s station. I guess the squeaky wheel really does get the grease.
She is still having some diarrhea but she has not vomitted since last night. Her sats seem slightly lower this morning but I’m trying not to stress about it. It’s not working, but I’m trying. We’re hoping Ramona will be able to come home soon. She will not have the one-on-one attention from the nurses here that she had in the PICU, so it is much harder to leave her, even for a few hours.
Please pray that her stay on the floor will be short. Please pray that her sats stay high. And pray for Andy and I. We’re getting tired and cranky, and are looking forward to the end of this hospital stay.
Thank you, Jane.
She looks BEAUTIFUL!!!
Continuing to pray…. .
You can still see her spirit shining through – what an angel baby. Continuing to pray and keeping you all in my thoughts daily. Home sweet home must be just around the corner…
What a beautiful girl! We are praying for you!
Hi, beautiful!!
Lookin’ good, Ramona!
Jane, sorry to hear you’re so stressed. I may have tomorrow off if you want some company….or want someone to stay with Ramona while you take a break. I’ll know later today whether I have tomorrow off.
Love you,
K.
I don’t know you but I stumbled across your blog and wanted you to know that your family is in my prayers. Your daughter is absolutely beautiful. What a doll. Stay strong, as hard as it may be. She seems to be a real trooper! Although I have no idea how hard what you are going through is, my son was born with hydronephrosis, which is basically an enlarged kidney that drains slower then it should. He’s on daily antibiotics and will be until he is 3 to prevent UTI’s. He was hospitalized when he was just under 3 months old with a high fever and bad kidney infection and had many catheters, an IV, u/s’, the works. And those 10 days were the most dreadful of my life. Again, he was in the hospital at 6 months old with another infection. Hopefully he’ll grow out of this condition. I just wanted to say to you that I’ve sort of been there, and stay strong. It sounds like you have a wonderful support system and your daughter, again, is just lovely.
We are thinking of you!
Trish
Hang in there, guys. Thinking of all of you and praying for the best for The Littlest Junkie.
Ramona is absolutely radiant. What a beaut. She is just gorgeous. With two open heart surgeries behind you, you and Andy still manage to raise two bundles of cuteness and sweetness. Hang in there guys. We can only imagine what you guys are going through, and marvel at your strength and all the cuteness in your household. We are sending deep prayers and good thoughts to you.
Hi There,
Ramona looks beautiful as always! I am sorry about this tough transition over to the cardiac floor. I would be upset too. I hope that Ramona continues to heal and progress. She truly amazes me. We are sending our love to her and all of your family.
Love,
Tina (and Nate, Betty, Chuck too)
Look at that smile! Clearly she knows she is loved SO much. Continuing to send prayers and positive thoughts your way from Hyperion in Connecticut…
Laura Ferris
Hi Jane
I had exactly the same feeling about the floor, I was going to comment on it yesterday but I thought perhaps we had a lazy floor or something. When Wren went to the floor (for a week!) we were very tired because 50% of the time when we returned he would be crying. I asked about the nurses and it seems they had a 3:1 ratio on the floor and a 1:1 in CICU. So, I guess it makes sense. Still, I totally understood when I saw other rooms where the whole family had moved to the hospital and was camping out (like, baby, children, older brother, granny). It wouldn’t work with Frost but it seemed to work for them!
I hope the sats return and stay high.
Jane and Andy
Ramona looks wondeful for all that she has gone thru. Her stats will improve, I am confident of that and she will be coming home soon. I will pray for pertection for her and peace for you and Andy.
Love A Ro
O Gosh – I love to see her smiling face. A follow-up to a comment I made couple of days ago when I said God’s glory was filling Ramona’s room – my husband said – “its filled with God’s glory because Ramona is there.” I loved that.
We’re both keeping you in prayer daily.
(I so wanted to visit this time in the hospital, but I’ve had an earache and scratchy throat past few days so wouldn’t dare). I am there my sweet Ramona Mae in spirit and I sing to you over my favorite Kim Hill CD. xxoo
Much love to you Jane, Andy, Simon and Ramona Mae.
Jackie and Mike