Thu 9 Aug 2007
Cardiology Ho!
Posted by Jane under Updates
[18] Comments
Ramona saw the cardiologist today for her first post-op appointment. They discontinued her lasix, did an EKG and an echo.
Her pulse ox registered at 84, which seemed about right and is fine for her. She weighed 19lbs 5oz. Also good. The cardiologist said she heard “good shunting sounds” from the BPA’s. The best part was that, for the first time, they were able to visualize both of her BPA’s on the echo. They have previously been too small to see except by angio CT. So that is just great.
The most surprising piece, which I take with a grain of salt, was what she said about a surgical plan. Keep in mind that she is not the surgeon so we’ll have to see. But she said she’d like to see Ramona wait until she’s two if possible for further surgeries. I’d like that too. Why not wait until she’s fifty? But that was the first time I’ve heard someone say she might not need another for awhile.
Thanks for your prayers. Here’s a quick photo from my phone (hence the terrible resolution) of the boo-boo’s watching Sesame Street. It cracks me up how big Ramona’s getting, she’s almost as big as Simon!
Love to you and yours, Jane.
Jane – I’m filled with “Amen, Amen, Amen.” Thank you Lord for new mercies every morning. Wow, what a beautiful sight those two are! The levity in your heart Jane is audible.
Much love to you all,
Jackie
A fantastic report. PRAISE THE LORD for His healing miracles!
I love those two boo-boo’s. Seeing the photos makes my heart smile.
Wayne (a boy named Sue?)
Oh, Jane & Andy, what great news! Love the picture of your two beautiful cuties!
I can’t of anything that would make me happier than your news.
Love the way they both have hands and toys in their mouths. Bring on those chompers!!
Hi Jane,
I read your post with a smile on my face. What great news all around!! I know how fantastic it must have been for you to hear that they can see those PA’s and that they’re growing. I remember the feeling. I got goosebumps when I read it because I know how very important it is for those arteries to grow for Ramona to get her full repair. Also, great news about the potential to wait until 2 for the next surgery. I hope that is the case!!!
I thought about you all day today and am so glad it was a good one!
Love,
Kelly
(You have two beautiful kids!!!)
What great news! One less medication to give, visible BPAs and a nice, long break between surgeries. Fantastic!
Drew’s got his cardiology appointment on Monday…I’m hoping for good news too!
these two are so adorable! what amazing good news. you must feel sort of like a different person than you’ve been the past months.
Wow…thank you Jesus. And I agree with Jackie, the levity in your voice Jane is very audible my friend. Love you all and LOVE the picture!
Love, Val
love seeing my darlings enjoying some cookie monster together.
Jane and Andy
GOd Is GOOD.. Ramona is a miracle baby for more for more then one reason. Thank you Lord.
Lots of love and prayers
Aunt Ro
…wish MY legs looked that good in pleats!
Wonderful news for you all!
Karen’s sister, Ann
We are rejoicing with you today!
Ramona is sitting up so nicely. How fun is that.
And your kiddos are always in the hippest of clothing.
Blessings to you all,
Nicole
What great news to start the day! I hope you are letting this soak in and feel the breathing room it allows. Ahhhhh. (and that dress looks even cuter ON! the girl can where anything.)
That is just wonderful! Yay!! We are so happy to hear that Ramona is doing so well. They look so comfy and adorable, I wish I was their sibling and could lounge out and watch Sesame Street with them…
Dear Ramona
It’s been a while since I wrote to you so I thought I’d drop you a line. It’s been really busy here. Do all my notes to you start that way? I guess they do and I guess it just is always busy here. Is it busy where you are? I’ll bet your mom is running ragged too…moms are like that. You’ve got a really good one there, Ramona, don’t forget, OK? You’ve got a really good dad too…he rocks.
So, aside from being busy it’s been really hot here too. I guess it’s like this every august in TN, hot…like desert hot only humid, and that means like, wet…so wet and hot but dry too. I’m not describing this very well. Sorry. It’s hard to be outside when it’s like this so we’re inside a lot which is hard because it’s so pretty outside, but it feels hot. Good thing we have big windows and can at least look outside to see what God’s growing around us, right?
I think of you guys often and pray for you all the time. I hope to see you soon!! Keep growing strong, Ramona! Kiss Simon for us…
love
Miss ang
Miss you guys already, love you guys!
that’s terrific news. thanks for sharing! loving how your kiddies look so cozy together. sarah p
Wow. I just stumbled onto your website. I am running the Chicago marathon this year in honor of my nephew, Clark. He too was born with Tetrology of Fallot two years ago. He had a very successful heart surgery (at Children’s Memorial) and is doing well. I am so touched by this website and by the friends and family that have surrounded you with love and support (and meals and grocries). I know that my sister and brother in law would have been lost without their close community of friends. I am deciding right now to become a prayer warrior for your little Ramona. I will pray that God will heal her heart and that He would continue to show you guys a peace that surpasses all understanding. I will also pray that God will give Ramona’s cardiologists wisdom about how to treat and care for her. God bless your family!
Nikki