Sat 26 Jan 2008
Good, Better, Best
Posted by Jane under Updates
[24] Comments
We’ve got a lot of news to report here at Rancho Ramona. And some photos to share.
The good news is that Ramona is pretty much recovered from RSV. She seems to be back to her old self. The better news is that she’s been taking some steps behind her walker and standing unassisted for a few seconds at a time. But the best news is that Ramona has had her feeding tube out since Tuesday and is holding her own. Yesterday she drank 29 ounces! We’re hoping we can leave it out for good. We’ll need to watch her growth and make sure we are able to give her her medicine orally. Any tips on getting her meds down without holding her down and prying her mouth open would be very welcome.
The loss of Seamus is weighing heavily. Words aren’t enough to describe how we’ve been affected.
Thanks for your continuing prayers. Please pray that Ramona’s upcoming cardiology appointment on February 7th goes well and that she continues to eat well on her own.
Love, Jane.
What a joyous sight this morning to wake to great news and wonderful photos. Praise God that things are going well!
Oh how we miss you all.
Thanks for the update and we will continue to pray.
Love
The Sages
Yeah! What wonderful news! Go Ramona, go! I love her profile picture. Simon and Ramona are so beautiful!
GREAT news and GREAT photos – the one of the walker stand off is a riot!
What great news! Especially not needing the tube anymore! Here’s my advice for giving meds orally. Drew got rid of his g-tube somewhere around 18 months old and we had been giving all his meds through the tube until then. I was desperate to find a good method and a pharmacist gave me this tip. Give Ramona a few sucks or licks of a popsicle before you give her the medicine. The coldness numbs the tastbuds a little bit and they don’t mind the medicine as much. Then give a few more licks after the medicine as a reward. This trick worked wonders for us! One popsicle would last us for days, I’d just pop it back in the freezer after I rinsed it off. And, he didn’t require the “popsicle treatment” very long. Ever since then Drew’s been a champ at taking his medicine. Good luck!
I think the profile picture shows how much she looks like Jane. I love her long hair. We will keep praying for you. Will they be looking at her artery growth at the next appointment?
I needed to hear good news today. God is good. Bless ya’ll (as we say here in Charleston..)
I completely agree with Rachel, I see so much of you in Miss Mona in these photos, Jane! Rejoicing in her progress and praying with and for you tonight…
Smiles all around
Jane,
What cutie pies!!! Ramona looks fantastic, and I love her hair–she does look so much like you. This is wonderful news that you have shared. We will pray that she keeps gaining and does well with no tubes. Maybe she could give Phare a few pointers on how to put on the pounds and the hair! I miss you all so much.
Still thinkin’ of you in Vermont,
Bekah
Dear Ones,
Thank you for the wonderful pictures of the children & report on Ramona’s progress. I am so happy for you &, of course, I join my prayers to yours.
I acknowledge your dedication & steadfastness, your empathy & your love for your family & for one another. You are doing a great job!
Lots of love, always.
Good news! Thanks for keeping us updated.
Thanks for sharing. I think of you guys often and hope to get together soon!
Much praise!
What a great update – I love the sassy hair cut on Ramona.
Great news about the feeding tube! YAY.
Ramona needs to come show Elijah how to put weight on his legs. It looks like she’s doing great!
We’ll definitely pray for lots of eating and a good cardiology appointment..
The pictures of Simon and Ramona once again made my day!
Ditto: smiles all around.
My 2 cents worth from past experience – are her meds liquid or ground I’m guessing – they could be mixed in her daily liquid intake –
Jane, I see your inquisitive, pondering, yet gracious glance in her eyes.
Love and prayers always,
Jackie
Hi Jane. You don’t know me but I’ve been following Ramona’s story for quite some time now. You posted for a while on iVillage (my oldest daughter was born in July 2004 too)and I followed a link from one of your posts there. I have to tell you that seeing these pictures and hearing about her improvement has made my day. I’ll be looking forward to hearing more good news. Hang in there – I’m not sure I could ever be as strong as you have been.
-Paula
I followed you from April (my YOUNGER daughter), on iVillage, not July. Geesh. Sorry for the mistake. You must think me crazy. =)
Praise God !!!!!
Ramona is a sweetie- and yes! she does look so much like Jane! We are keeping you all in our thoughts.
XO, Vanessa and Matt
Jane and andy
So good to see Gods’ hand on your lives and Ramonas’. Way to Go Ramona..
Lots of love
Aunt Ro
That picture of Ramona in profile is stunning! I am so delighted to read this post. We, of course, will keep you all in our prayers.
That is fantastic news! I have been wondering about you guys and how you were doing. I can’t believe how much your munchkins have grown. We’ll be thinking of you. Stay warm!
Wow, look at how much they have grown! Simon looks like a big boy and Ramona is looking much like a big girl herself. I’m happy that the kids are doing great and that Ramona has overcome the RSV. Always thinking and praying for you guys.
Judy