Ramona Mae

Ramona is two years old today. She’s shaping up to be a beautiful, sweet, challenging and charming little thing. She loves turtles, sitting on people’s heads, dressing up (Oh wait! That one is all me…) and playing with Simon. She’s not at all who I thought she’d be when I learned I was pregnant with her, but I just couldn’t be more delighted with the person she’s turning out to be.
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So, I talked to the cath surgeon and cardiologist today. They both felt that the initial evaluation from Halloween’s cath was correct. Dr. Wax, the cath surgeon, spoke with a colleague at Cleveland who reviewed Ramona’s angiograms and also concurred. He is still waiting to hear from another colleague who is out of the country.

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The news from the cath surgeon on Friday put us into shock all over again. For me it feels very much the same as the days following Ramona’s first diagnosis – questions about her future, our ability to face it, fear of losing our daughter, the profound tragedy of it all.

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Sorry to worry you guys, we could not get access to the blog (thanks Jon for getting us hooked back up). So here’s what’s going on…
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