Sat 16 Jun 2007
Time To Make the Donuts
Posted by Jane under Updates
[3] Comments
The doctors have hinted to us this time around that Ramona will likely require 5-7 open heart surgeries in her lifetime. So, for the first few years of her life, she may have open heart suregry as often as you or I go to the dentist.
We’ve got to find a way to make this somewhat routine or we’ll lose our minds. It helps to sleep at home. It helps to talk to friends about their problems. It’s helps to meditate on the spiritual reality that Ramona is God’s, not ours. I don’t know why, but this time it’s much easier. It’s really, really hard still, but this feels like a cake walk compared to last time.
But geez are we getting tired. We’re trading off shifts at the hospital, trying to get our daily Simon fix and hopefully get some sleep too. Andy’s trying to get some work done. It’s pretty numbing.
Ramona is recovering so well so far. Please pray that this continues and that the other shoe never drops. Thank you for all of your well wishes and prayers. More on Ramona’s progress to follow…
Nighty-night, Jane.
Why did you have to say “donuts” to me at 10:44pm, Jane?? Now I want a donut, dang it all…where am I going to get a donut down here at 10:44pm? You know what I really want is a Krispy Kreme donut too…
well, hopefully reading my rants about donuts and the weather helps a little. If I were there I’d get donuts for both of us, maybe we’d share with Andy…definitely I’d pass one to Simon to thus endear me to him forever as the “lady who bring donuts.”
I actually like that they talked about future surgeries. That feels like doctor speak for hopeful somehow. So, in lieu of donuts tonight I’ll savor hope.
peace to you all…we love you
ang
I am praying for your sweet girl. So are the girls on the board.
Hey Jane, I’m so happy that its easier this time around. when i saw mona mae i was really worriesd about you guys and her and, you know, everything, so its awesome that its easier this time. But, I do still get that its hard and if you guys need anything AT ALL, I’m totally here, I mean its summer, I’m basically stationed in front of the T.V. waiting for something to do. It was really great talking to you today, for some reason i felt like it had been SUCH a long time, maybe it’s because when Mona’s back in the hospital time seems to just snail on by. Anyway, I love you guys all so much, I miss you all, and your definetly going to see me in the hospital sometime soon, I’ll bring you guys some eclaires, which i figured out how to make. Simon, I miss you, you look so cute in that picture, I can’t believe how boy like you are. Even though everytime I see you I saw that or something along those lines, it still constantly amazes me. Andy, I liked being able to talk to ou on thursday, it was great seeing you, and I hope your getting sleep and managing to keep your mind busy with different things, I was looking at the lollapalooza (sp?) line-up and I saw that a band that comes from ETHS might be playing this year, it seems like every year i manage to know someone playing ;). Mona Mae, I love you, dad always called me a trooper after doing something like getting to the top of squa peak, and you are basically the epitimy of trooper, I think you should get it trademarked when you get old enough. Jane, like I said, I miss, you I’m happy for you, and I’m here for ALL of you.
~Lots ‘o Love
Eva
P.S. Please excuse any spelling errors or anything in that general area, I’m really used to IM.