I’m chock-a-block with “deep thoughts” lately. A friend of ours from Mucca Pazza, accordian Ronnie, teaches music classes with babies. She told with me once that she thinks every baby has their own bounce. A tempo that they will move up and down to in that jerky way that toddlers do.

It doesn’t even matter what they’re listening to. A waltz, a jig, gansta rap, it all gets the same knee-locking, arms out, open-mouthed bounce. I’ve noticed that Simon is just now finding his bounce, it’s sooooo cute. I get the sense that he really is expressing his joy, it’s something he does when he’s really in his comfort zone and I can tell he’s doing it just for him, not to entertain me.

I’ve been watching Ramona deal with the pressures and stress of waking up, struggling against the breathing tube, getting mad when we poke and prod her. She happiest when she’s left alone to sleep and rest. When she gets agitated her oxygen drops and it takes her awhile to recover, but every time it happens she seems to rebound a little better. I think she’s finding her bounce. She is finding her comfort zone, learning to adjust to being in the world again. I’m proud of her. Proud of her resillience, proud of the way she meets all of these challenges, proud of her being able to handle something so big even though she’s so small.

We love her. We pray she’ll be able to find a way to get enough blood to her lungs to get her through periods of stress. We pray we’ll find ways to comfort her even though we can’t hold her. We pray she’ll know we’re thinking about her even if we’re not there.

Thank you for your prayers. BTW, this photo is of Ramona and us right before her surgery. This was the last time we were able to hold her. We’re hoping to get the chance to hold her again sometime this week if she remains stable.

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Love, Jane.