Ramona Mae

Well the doctors told us at rounds this morning that Ramona will come home tomorrrow! We’re thrilled, proud and terrified.
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Many have called, left voicemail, sent email, pinged me via IM, even sent me messages on MySpace. I haven’t gotten back to most of you, but I want to thank everyone so much for reaching out to us. The past week and a half have been totally overwhelming, but thankfully so has your support.

If I could I’d sit down with each one of you over a beer and tell you how wonderful you are, how beautiful Ramona is, and how proud I am of her. I hope to reconnect with you all soon.

Love, Andy

Today Andy and I have decided to spend the night at home. We are driving ourselves crazy with worry these past 48 hours. Ramona is having her first real setbacks. The doctors have told us over and over again that every patient this sick has setbacks, but it’s just so hard after she’s been recovering so miraculously.
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Ramona is having trouble maintaining her saturation tonight. She is in the high 60’s to low 70’s and they are trying to figure out why. We’re trying to go with the flow, but we are both here at the hospital and are very scared that this might be a serious set-back.

I’ve been commended many times this past week for trusting my instincts and taking Ramona for a second opinion. It’s so clear now that that was the right thing to do. Well I have a confession to make. At the time I wasn’t so sure if I was doing it for the right reasons. (more…)

Just wanted to draw your attention to a new way to help Jane and Andy these days: “grocery runs”:http://ramonamae.com/help-needed-grocery-runs/. Thanks for all the ways you have been providing for the “Fabulous Four”:http://ramonamae.com/2007/on-togetherness/!

I was talking to the nurse-practitioner today about Ramona’s tenuous long-term prognosis. Trying to get concrete answers from her is like squeezing blood from a stone. And it doesn’t help that I assign special meaning to every time she raises her eyebrows, looks over my shoulder or checks her clipboard. I mean geez, she might of just had a bad piece of fish or something.
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Just a little heads-up here: Our hosting provider will be taking their whole operation down for about three hours starting at 1:15 AM CT on Sunday, February 25, for emergency electrical repairs. If you try to visit RamonaMae.com then, you’ll get a whole lot of nothing — but please come back Sunday morning and we trust everything will be back to normal.

We’ve had a lot of glimpses of the old Ramona.
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I called Ramona’s room this morning to check in on the superstar. The Mom who answered was clearly not Jane. When I got a hold of Jane I found out why. Rock Star Ramona is doing so well that she has been cleared to move to the cardiac floor. (more…)