Ramona Mae

Jane and Andy are super-grateful for all the help you have been giving them in the grocery and meals department. So, let’s keep it coming! June dates are open to sign up for “meals”:http://ramonamae.com/meal-schedule/ and “grocery runs”:http://ramonamae.com/help-needed-grocery-runs/. Thanks to everyone who has contributed in this way!

I am not a doctor basher. I have been thrilled with the level of care that Ramona has received, the folks at Children’s Memorial saved her life. But yesterday I had my first really disappointing experience with a new specialist. We met with Dr. Luck, a pediatric surgeon, about doing Ramona’s G tube surgery. I kept thinking during the appointment that she should have kept her maiden name, which I can only assume was Downer. Or Tough, in which case she should have hyphenated.

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Miss Mona Mae weighed in at an even 16lbs this morning.

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I often think of life as a rocky river bed to be crossed. The journey from one bank to the other is not a straight line and the complexities of the path can’t be taken in all at once. You simply have to look at the rocks around your feet and decide which one is your next best choice. There is no wrong way across if you decide this way. You may not be able to choose where you will come ashore, you may have to backtrack, you may get tired, but that’s life. The question that has been plaguing me is, “How do you decide which rock is next?”

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It’s probably a bad idea to post when you’re angry. This is one of those posts that should never be mailed.

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My girl’s got ’em.

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There was a stretch of a few years when Mother’s Day was complete torture for me.

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Some great news today. Ramona had an appointment with cardiology yesterday morning to be cleared for the G tube surgery. Here’s what happened…

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I yelled at the fence guy today. He is doing a very crappy job, I want it better and I’m not going to pay him until it’s right. That’s what I should have said. Instead I told him I was busy taking care of Ramona and Simon and didn’t have time to babysit him too.

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We weighed Ramona this morning, 15lbs 3oz, what a champ. She’s been working pretty hard these past days, sitting up with help, even trying to bear a little weight on her legs. She’s getting the hang of grasping a few select objects and is becoming a tube Houdini. I know I should be thrilled and optimistic. And I am hopeful, but today I’m still just really worried about her.

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