Thu 22 Feb 2007
Pink as a Piglet!
Posted by Jane under Updates
[16] Comments
Our little Mona Mae is a wonder. I remember the first time the doctors did rounds the morning after her surgery. They spoke in hushed tones, they were serious, they were soothing. This morning they just marched right in and started teasing each other and the nurse, making comments about Ramona’s progress like “awesome!”, “fantastic!” and “amazing!”.
I think I took my first really deep breath in a week this morning. I forgot how great it feels to breathe in, stretch your arms up and breathe it right out again. If you don’t believe me, try it!
So, the doctors told us yesterday that Ramona’s next big obstacle would be feeding by mouth. They said it can sometimes take babies days or weeks to regain their sucking reflex after being intubated for so long. Well guess how long it took Ramona Balboa? Exactly about 5 seconds. She had her first bottle today, drank about 1.5 ounces and promptly fell asleep snoring. She wanted more but she’s still aspirating (inhaling a bit of the milk) a little and they want to try a slower flow nipple before they really let her have at it. They also don’t want her to spit up through her nose. She used to do that at home and it’s not a good look for anyone.
Today’s pick is a shot of Andy comforting her. She’s learning to weather her tet spells. She has them pretty frequently while awake but rebounds quickly. It’s another good day in the PICU. Thank you for your thoughts and prayers. Next stop: We’re hoping to have Ramona moved up to the cardiac floor sometime next week if possible. There they will do her speech, occupational and physical therapy. They will continue to work on her feeding and allow her to rest and heal.
Dear Ones – Ramona is like her Grammie who doesn’t like to miss a feeding! You know how I like to thank God at mealtime: We get to eat again! Yeah:) GO, Ramona!
It’s just so incredible. And inspiring.
And also kickass.
hooray!!! hooray for more progress, for Ramona’s instinctive sucking reflex, and for her folks’ deep breaths alas! aaaaaaaaah. this is great news! i look forward to sharing this update with Avery (i’ve been reading to him about Ramona’s progress every day!). thinking fondly of the family, sarah p
What great progress! It is inspiring to see and read through the updates the improvements that Ramona is making. It is also wonderful to see a grin on my brother’s face in the attached picture!
Praise God! I’m so happy for Ramona & you!!!
I love the way that Ramona has her hand wrapped around her daddy’s thumb.
Yeah on the feeding! Ramona is such a wonderful testimony (and so are her parents) to how great is our God.
Could a family be any more photogenic?! Seriously! You are all so beautiful, in countenance and in spirit.
Blessings!
So glad to see this progress with your little girl. Wonderful news!
this is so great! I hope to stop by sometime this weekend … let me know if I can bring you anything! much love!
Yippee! Go Mona Mae! What an amazing testimony she and all of you are to us all.
Big love and Kisses,
Jen
That is wonderful. She looks so much like Daddy! We will continue our night time prayer vigils for her.
Jane and Andy,
With each update that I read I weep. Weep because God is faithful and good and he has answered our prayers. I weep because Ramona has confirmed for me once again that God is real and personal. I weep because I am a mother of small children. My heart hurts for you as I try to imagine myself in your place. …I have snuggled with my boys more this week. Told them that I love them even more than I normally do. I have wept just looking at their faces as I watch them sleep. I have cried in prayer to God asking his forgiveness for taking what he’s given me for granted. I tell you this because in the midst of what you’re going through – this life-changing event, it’s been life changing for me. God is using your family to change me. Indeed, you have been chosen, and His purpose is a great one. Thank you for being willing to share each step of the way with us. We are on this journey with you.
When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. For I am the Lord, your God, the Holy One of Israel, your Savior.
Isaiah 43:2-3
Dear Ramona
It’s really warm and sunny here today again! I keep expecting it to get cold each morning and it might because it is, afterall still the winter technically.
I was thinking today that it’s still winter where you are too but that you shouldn’t worry, spring ALWAYS comes, Ramona…truly, it does…even in Chicago. You might hit a cold spell here and again but you know the warm will come back soon and then the trees start to bud and then the leaves pop out and suddenly you open your eyes one morning and everything is green and vibrant.
The world is amazing, Ramona. Really it is.
Keep growing strong and steady…
love,
-Miss Angela
Dear Jane and Andy:
What great news that Ramona Mae again shows her fighting spirit. She looks so peaceful in Daddy’s arms and truly is a remarkable
little angel!
May God Continue to Bless All of You!
Nancy Fisher
It is such a joy to read this news today where Ramona continues to amaze everyone. Thank you Jane for your honesty and sharing your deep thoughts with us. I love the way you express yourself – kind of tell it like it is in such a clever way. My eyes are getting a good work out as I usually cry each time that I read your updates – some are tears of sorrow as I can’t imagine going through such a trial being a new mom myself. And thankfully others are tears of joy. May you and Andy continue to feel the love, grace, peace, strength and hope of God as you take life one moment at a time.
Just great to see this picture. Thank you Lord for what you’ve done.