Thu 7 Jun 2007
Mysteries
Posted by Jane under Updates
[15] Comments
There are a few things happening in our house lately which defy explanation. Cue spooky prepared piano music…
An infant with an unrepaired heart defect has been packing it on like she’s Dom Deluise. Where is all that weight coming from? We haven’t increased her intake in a couple of months and yet she grows and grows! Guess who she gets that from? Simon has oodles of unexplained bruises. It looks like he’s been playing prison football. Ramona, who is supposed to be significantly delayed with her motor skills, managed to pull out her NG tube three times in one day.
So we’ve got a lot of curious happenings around here, but one riddle has been solved. We finally got Ramona a consult with the new pediatric surgeon, it will be on June 29th. I’m disappointed that it’s still so far out but am trying to be patient and grateful that she has access to such a high level of care.
Ramona’s got a bit of a cold and was going through some withdrawal. Transalation: projectile vomitting. But we’ve got her back up on her ativan doses and she hasn’t thrown up since, so amen to that.
Andy and I are planning a quick get-away for the last weekend in June. My mom and sister have kindly agreed to mind our brood. Here’s a shot of Simon about to aquire another bruise and one of Ramona showing off her new tummy time skills.
Love, Jane.
Simon looks like he is ready to take on anything. Ramona has such an innocent, peaceful smile. My, what beautiful children you have!
Sarah
Jane
Praise GOD for the mysteries. I am so glad you and Andy are getting away for awhile. I love Ramon’s smile, and Simon looks so happy. Yoou are great parents.
Love
A Ro
Simon looks like such a big boy I can’t believe it!
Those children are adorable! It brings a smile to my face just to look at them.
Hey Jane
I’m glad things are going okay with you guys (albeit with some mysteries). I hope Simon is just bumping into things in his enthusiasm for motion and Ramona is gaining because her heart isn’t working so hard.
I have missed your thoughtful posts when you post less frequently and was hoping it was just that life is going on in its hither-and-thither and chaotic kinda way.
I envy your planned vacation. I have not gone away with my husband since our first child was born BUT we are taking a family holiday in July, with Wren coming to California. We are a little anxious taking him away from home but our vacation will be in the shadow of UCSF which is just the reassurance I need.
Keep the pounds coming Ramona.
Wow..Ramona is doing such a great job with head and neck support. Maybe Simon can teach her his George Jefferson move soon. He just looks so blissed out. Not a care in the world. As it should be. You’ve got two very content children. Way to go Andy and Jane.
Enjoy your weekend get away.
i can totally hear simon singing a la brady bunch (the silver platters!), “i think that i’ll go for a walk outside now; summer sun’s coming my way…” glad to hear you will have a consult with the new pediatric surgeon. peaceful weekend to everyone, sarah, lance, avery
no petechiae on Simon, right?
Sarah:
I read your reply like an hour ago and I’ve had that song stuck in my head ever since! Thanks!
[i]Everybody’s laughin’
Sunshine Day
Everybody seems so happy today
It’s a sunshine day![/i]
God bless you guys. My heart smiles.
There’s a great song (many -) by Van Morrison that comes to mind. A verse from “The Mystery”:
Let go into the mystery
Let yourself go
There is no other place to be
Baby this I know
You’ve got to dance and sing
And be alive in the mystery
And be joyous and give thanks
And let yourself go
Much love,
Jackie
Dear Ones,
All of this sounds perfectly wonderful!
The pediatric consult is just 3 weeks away:) Your get-away weekend will follow soon thereafter:) Simon is doing the stuff that boys do:) Ramona is an enchantress:)
Thanks for keeping us in the loop. May all be well & go well for you & your dear ones:)
Holding you close in thought & prayer!
Hey Jane,
I don’t comment alot but I’m still praying.
Wendy
they are so beautiful!! thank goodness for grace:) we will keep her in our thoughts thought and hope the apt goes well and is productive. have a very good weekend!
Seeing these pictures of Simon and Ramona and having had the privilege being in their presense makes me want to sing:
“In His tenderness, we gather up the pieces of our lives.
Lying in His tender arms never felt so right.
The hard road behind me is reflected in His eyes, and the glory of the bright lights can’t compare to the feeling when He smiles.
You’re the good things I threw away, coming back to me everyday. You are the best that could ever be. You are what love means to me.
I’ve been around and seen it all from the bottom to the top, and Lord I can tell you now, I am thankful for what I’ve got.
These prison walls inside of me never let this poor soul free, till the power of Your true love broke them down just in time to rescue me.
You’re the song I could never write, you’re the magic in my heart tonight. When the morning sun comes shining through, I’ll still be holding on to You.
You’re the best it could ever be. YOU ARE WHAT LOVE MEANS TO ME!
Ramona’s doing a Jane smile!